Wednesday, June 17, 2015

The plan....

First of all....  so sorry for the delay in posting.
I have had some internet issues.
But good things come to those who wait...

Today we got some VERY GREAT news
Kori had her much anticipated MRI.
There was no sign of anything new.
No new growth.
Her brain is moving back into place and as it does,  more things are improving. 
The MRI allows Dr. Tudor, her Oncologist and Dr. Richards, her Radiation Oncologist, to create her treatment plan.
She will begin cancer treatments on Monday.

A funny story:
Kori recalls Dr. Rao telling her that when he 
cut into her brain, he needed to re-enforce it with a metal plate.
She recalls specifically asking him the question of her cut into brain
and she vividly recalls him saying he placed a metal plate in her head.

But the MRI showed no metal plate.
And so she asked Dr. Richards about the metal plate.
How big is it?
Where is it placed?
And poor Dr. Richards
searched and searched the MRI for said plate.

As it turns out
Kori must have dreamed this.  Maybe in the days immediately following her surgery when things weren't quite "real" and, as she puts it, "all a blur."  
Apparently there never was a metal plate.
No wonder she had no problems getting through security at the airport.
 She had a very good day at Rehab today
It kind of blows when you are working your buns off and there is a guy just 
standing there, with his arms folded, doing absolutely nothing.

So...  Kori has a condition and I am sure it has a super awesome medical term attached to it
but the jist of it is....
as a result of the stroke, she has developed hypersensitivity to the left side of her body.
And the effects of hypersensitivity are described like this
Anything that touches her skin triggers her central nervous system to tell her brain that she is feeling intense pain.  So if a drop of cold water falls on her arm,  it feels like her skin is burning like the drop of water is a drop of fire.   Consequently, she can't sleep at all because everywhere her body is touching something (the mattress, the blanket, her clothing) she feels pain.

And naturally this makes her very tired and very cranky and VERY MISERABLE!!

So today she was prescribed some medication to combat this.
We are so excited for her to get some relief.

Until Monday, this could be our prayer for her
Totally wiped out from therapy.

Today is Mom's Birthday
and all she wanted was to have lunch with the three of us.
Kori and Kami got a delicious lunch
and Mom and I got something less delicious.
And I kept swiping from Kami's bowl every time she looked away 
or got up to get more water.
I almost ate half her lunch
 It was fun to get together
I think we should do it once a week now. 
We have so much to say
And so many stories to tell

My dad is up North with Garrett for his baseball tournament
I feel badly that this is kind of a lame birthday for her.
She'll be all alone tonight
Which for an only child, might be delightful.

My observations of Kori today:
She is much more mobile
Her personality is coming back in her face and voice
She is ready for the upcoming events
and
She is TOTALLY addicted to Candy Crush

2 comments:

  1. I LOVED that while we all visited about HER she just sat there playing Candy Crush. It was a GOOD day...FUN and YUMMY lunch...the half I got to enjoy. No wonder I felt so hungry after.Totally joking I was sick to my stomach all night.
    I was SO nervous about the MRI results but slept SO good last night knowing the results were so positive. I am nervous for her to start treatments but on the other hand so excited to kick cancers ass!
    If anyone can KORI can!

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  2. Great news!! Sorry to hear about the intense pain on your left side!! Hope you get relief Kori. Sending good thoughts, prayers, wishes.......

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